August 2016
Program & Event News
Research Updates

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Approved for funding through North American Re:Rare, a collaboration between Cures Within Reach and The Canadian Institutes of Health Research
TAM4MTM: Tamoxifen therapy for myotubular myopathy


Rifampin to reduce elevated levels of blood and urine calcium in patients with inactivating mutations in the CYP24A1 gene



Volunteer Spotlight

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Welcome to our new Executive Board member
Matthew Rich , PriceWaterhouseCoopers

Matt is a leader in PwC’s Strategic Technologies practice and takes an innovation-led approach to his clients when delivering their strategic technology transformation initiatives. His 19+ years working at the intersection of technology and pharma R&D have provided his clients with pragmatic technology solutions to improve the way therapies are developed.
fundraising powerhouse
Steve Goodfriend, UBS 

A big shout-out to Steve Goodfriend, our volunteer golfer coordinator for the Longest Day of Golf who had amazing statistics on the course (117 holes this year) and amazing "off the course" fundraising statistics.  This year, he raised $5,446 dollars through 95 individual donations.

THANK YOU, STEVE! 
 

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Recent Event Photos